One girl's view of disease as a gift, not a burden.
Myth: Exercise is bad for you if you have MS. The day I was diagnosed with Multiple Sclerosis my neurologist went over a huge list of things I should know about my disease. Thank goodness I had a friend with me to be my advocate, because in that moment about 9 out of 10 of […]
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My MS body reminds me of a reno on Fixer Upper. This show already went off-air 2 years ago but I of course just started getting hooked. Late to every trend party I am completely unashamed. I am looking to buy a house in a state that is considerably more affordable than the one in […]
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My love of rain is helping my night tremors. Before I even realized my body was shaking and vibrating while I sleep, I began using a rain app at night. I absolutely love the sound of water. Droplets on a tin roof, pouring rain on a city street, the delicate pitter-patter against a window, pellets […]
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I have never been so worried about a person I’ve never met. A few months ago I commented on Elan Gale’s IG post “you are my favorite person I have never met.” I don’t know Elan personally, but I have always found him to be funny and wise and kind of wonderful. I waved at […]
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A little MS birdie is whispering I might have to move to Hawaii. When I got diagnosed with MS, my fancy new neurologist told me three things. You have to quit smoking. Working out (and not smoking) are the only two natural things that have been proven to slow MS progression. Heat will make you […]
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My thumb stopped working and I feel privileged. For the past two weeks, all I can think about are the privileges I enjoy. I have been brought to my knees. I have been overcome with tears and sobs. I have been infused with sorrow and rage. As my brain and my heart weigh and measure […]
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No one should ask me to hold anything breakable. In the last few months I have been particularly clumsy. In the old days I used to consider this a personality trait. Something that is part of my DNA and inexplicable, like how I am often peppy and I have hazel eyes. Now it’s clear this […]
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I wrote a love letter to Selma Blair. Okay, not a love letter exactly but I finally wrote to the human that has been our most prominent public MS mascot since… I don’t know. Montel? Mr. Williams was quite impactful on Oprah in 2009. Actually, Jack Osbourne is very outspoken and an awesome MS champion […]
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So this one time, at MS camp, a surgeon temporarily removed most of my ear. And I didn’t realize it until after I woke up. Yep, it’s finally time to tell that story. Because lately, I’ve been feeling a bit sad. A little stuck. Slightly down in the dumps I guess you could say. I’ve […]
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Paddle boarding is like living with MS. Ever since being diagnosed ~ 16 months ago already ~ I have been pushing my body. To become more and more healthy, but also to explore outdoor activities and sports I’ve always wanted to try. Besides, if you’ve got Multiple Sclerosis, you can never get enough Vitamin D. […]
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I never knew what Multiple Sclerosis was. Over the past year, I have found there are plenty of people who don’t really know much about this disease unless they have a friend or family member who is grappling with it. I’ve also discovered that people really want to know what the heck Multiple Sclerosis is, […]
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My trainer says I’m super strong. I have Multiple Sclerosis so I have to work out. A lot. When you are diagnosed with MS everyone is very clear; working out helps heal MS. The more I strengthen, the more my muscles will continue to support me. The harder I work out, the more I can […]
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I was brainwashed to be a smoker. I remember my first cigarette – so incredibly disgusting by the way – but I don’t remember the why behind it. I was with my childhood best friend Sarah and I do remember that we really liked to try “adult” things together. I feel like smoking was just […]
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I grew up knowing I was different. We all are, in such fascinating and quirky ways. It is what new lovers spend nights whispering and giggling about over delivery in bed. Discovering the nooks and crannies of each others’ weirdly unique souls. And then there are some things you spend your whole life thinking are […]
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Life is full of patterns. Routine and predictable bits and pieces of energy that seem to always come back around, no matter what you do. This blog will usually attempt to point out the impermanence and flow of it all, but not this post. Let’s take a moment to celebrate the patterns. And with MS, […]
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Last night was an enormous breakthrough. I slept on my right side. My entire life I’ve been a right sider in all things, including sleeping. I don’t have a “side of the bed” preference, except that I like to be the furthest away from the door… unless there’s a window which really makes things confusing… […]
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