okay, hold the Phone.

The word “okay” is incredibly underrated. Whenever I get a call or an email from someone newly diagnosed, I feel so privileged they have chosen to speak with me. To connect, to vent, to cry, to express anger, or to simply ask a few of the hundred questions we all have at the very beginning. […]

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forward.

Things feel real easy and I’m trying my best not to question it. Normally, for the most part, I feel like there is a faint headwind in my life. It’s light but consistent. Always there, pushing ever so slightly against whatever I am trying to do. I don’t like to talk about it because it […]

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the reality of the Situation.

My treadmill is making me question reality. 30 days in quarantine and I feel like I am staving off madness through travel. Travel via a 32″ screen attached to an oversized treadmill situated in an undersized bedroom. Yet I feel that I am actually exploring other countries. The persuasions our mind will create to survive. […]

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stains. and Space Mountain.

No one should ask me to hold anything breakable. In the last few months I have been particularly clumsy. In the old days I used to consider this a personality trait. Something that is part of my DNA and inexplicable, like how I am often peppy and I have hazel eyes. Now it’s clear this […]

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human in training.

Living with Multiple Sclerosis while adopting a 7 month-old rescue dog is humbling. So if you were wondering why my poor sweet blog, which I love more than anything, has been left alone to wither for more than 2 months… well, puppy’s out of the bag. For my birthday this January, I welcomed a perfect […]

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MS Dating 911.

Dating. What a truly horrific thing to embark on in your 40s. Especially in Los Angeles. I have to be honest; most of the men here my age who don’t have a recently abandoned family are…mmmmm….not quite right. Something tends to be a bit off with these guys and it really doesn’t help when you […]

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overcome.

I love movies. When they are well made or innovative or emotionally connected or all of the above, movies are my favorite thing of all the things. Last week I saw A Quiet Place and experienced something for the first time as a movie-lover. I felt the weight of the world, the stakes of a […]

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the little things.

Last night was an enormous breakthrough. I slept on my right side. My entire life I’ve been a right sider in all things, including sleeping. I don’t have a “side of the bed” preference, except that I like to be the furthest away from the door… unless there’s a window which really makes things confusing… […]

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MS or Mammoth?

When you have MS, sometimes it is hard to know if your body is responding to the disease or just regular old human things like being 9000 feet above sea level. It’s a conundrum. When I was first diagnosed, my neurology team told me all about extreme hot weather and avoiding jacuzzis and saunas… apparently […]

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The Anniversary.

One year ago today I almost lost my eyesight forever. One year ago today I spent the night in a hospital, overwhelmed with incredible fear and loneliness. One year ago today I was diagnosed with MS and it was the best thing that ever happened to me. The first week of April 2017, physically I […]

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