what MS feels like: a vaccination tale.

My second Covid vaccine shot delivered in more ways than one. I am just settling into my new home in rainy Texas, but I received both of my Covid vaccination shots in sunny California. Back in my old neighborhood, I was surrounded by anxious humans scrambling to get this vaccine. People cleverly and unabashedly figuring […]

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shake, shake go away.

My love of rain is helping my night tremors. Before I even realized my body was shaking and vibrating while I sleep, I began using a rain app at night. I absolutely love the sound of water. Droplets on a tin roof, pouring rain on a city street, the delicate pitter-patter against a window, pellets […]

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the balance.

Practicing restraint may be my biggest life challenge. I’ve been feeling so, so good. Generally speaking, since my Multiple Sclerosis diagnosis. Generally speaking, since I crossed over 40 and my body began screaming for me to go to bed before 11pm and eat less junk. Generally speaking, I have been feeling great. Around the same […]

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stains. and Space Mountain.

No one should ask me to hold anything breakable. In the last few months I have been particularly clumsy. In the old days I used to consider this a personality trait. Something that is part of my DNA and inexplicable, like how I am often peppy and I have hazel eyes. Now it’s clear this […]

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Step inside.

I never knew what Multiple Sclerosis was. Over the past year, I have found there are plenty of people who don’t really know much about this disease unless they have a friend or family member who is grappling with it. I’ve also discovered that people really want to know what the heck Multiple Sclerosis is, […]

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buzz.

I grew up knowing I was different. We all are, in such fascinating and quirky ways. It is what new lovers spend nights whispering and giggling about over delivery in bed. Discovering the nooks and crannies of each others’ weirdly unique souls. And then there are some things you spend your whole life thinking are […]

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Ride or Die.

Life is full of patterns. Routine and predictable bits and pieces of energy that seem to always come back around, no matter what you do. This blog will usually attempt to point out the impermanence and flow of it all, but not this post. Let’s take a moment to celebrate the patterns. And with MS, […]

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MS or Mammoth?

When you have MS, sometimes it is hard to know if your body is responding to the disease or just regular old human things like being 9000 feet above sea level. It’s a conundrum. When I was first diagnosed, my neurology team told me all about extreme hot weather and avoiding jacuzzis and saunas… apparently […]

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