One girl's view of disease as a gift, not a burden.
The word “okay” is incredibly underrated. Whenever I get a call or an email from someone newly diagnosed, I feel so privileged they have chosen to speak with me. To connect, to vent, to cry, to express anger, or to simply ask a few of the hundred questions we all have at the very beginning. […]
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My second Covid vaccine shot delivered in more ways than one. I am just settling into my new home in rainy Texas, but I received both of my Covid vaccination shots in sunny California. Back in my old neighborhood, I was surrounded by anxious humans scrambling to get this vaccine. People cleverly and unabashedly figuring […]
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I have never been so worried about a person I’ve never met. A few months ago I commented on Elan Gale’s IG post “you are my favorite person I have never met.” I don’t know Elan personally, but I have always found him to be funny and wise and kind of wonderful. I waved at […]
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My company is making me use my vacation time and I am learning. It’s totally fair. I don’t ever take enough time off and I have now racked up enough days to gift a trip to a small army. I get it. Paid vacation is not to be taken for granted and I don’t… but […]
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My thumb stopped working and I feel privileged. For the past two weeks, all I can think about are the privileges I enjoy. I have been brought to my knees. I have been overcome with tears and sobs. I have been infused with sorrow and rage. As my brain and my heart weigh and measure […]
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I wrote a love letter to Selma Blair. Okay, not a love letter exactly but I finally wrote to the human that has been our most prominent public MS mascot since… I don’t know. Montel? Mr. Williams was quite impactful on Oprah in 2009. Actually, Jack Osbourne is very outspoken and an awesome MS champion […]
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My community is on fire and so is my heart. I may have a chronic illness and I may have chronic dating problems in Los Angeles, but I have formed a group of friends that are solid and loyal and full of love. We are all so very different, but we are there for one […]
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I had a very long, insightful conversation with a stranger and it got me wondering about my rights. The 6th day of November, 2018. Mid-terms Day, Voting Day, Election Day… Human Rights Day, in a sense. It is our special right to vote and we all know it. You see it everywhere you turn this […]
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Everyone needs support. When I first got diagnosed I had an amazing friend with me the whole time, who let me lean on his shoulder and cry and then laugh and look at each other stunned… he shared lots of emotions with me that day. I could not be more grateful to have such wonderful […]
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Tracy's Life with MS 